Jansen type metaphyseal chondrodysplasia

Support Type
Support Services
  • National Dissemination Center for Children with Disabilities

    NICHCY serves the nation as a central source of information on: disabilities in children and youth; programs and services for infants, children, and youth with disabilities; IDEA, the nation’s special education law; and research-based information on effective practices for children with disabilities.

    General Support Organization Last Updated: 13 Nov 2018
  • werathah

    To provide support and health education to patients and their families with genetic and congenital disorders

    General Support Organization Last Updated: 13 Nov 2018
  • Caring Voice Coalition,Inc,

    Caring Voice Coalition empowers patients who live with a life threatening chronic disease through comprehensive outreach programs and services aimed at financial, emotional and educational support. With a steadfast dedication to the organization’s set of core values, our knowledgeable, caring staff maintains our solid reputation as a dependable, responsive organization with a unique, holistic approach to improving the lives of our patients.

    General Support Organization Last Updated: 13 Nov 2018
  • Rhode Island Rare Disease Foundation

    The mission of the Rhode Island Rare Disease Foundation is to benefit Rhode Islanders living with a rare disease and their families by: providing information and support, raising awareness, advocating, and educating both the medical community and the general public.

    General Support Organization Last Updated: 13 Nov 2018
  • Erfocentrum

    Through providing objective, reliable information the Erfocentrum supports people in making informed choices regarding their own health and the health of their children. The Erfocentrum also supports people in forming their own personal opinions about social and ethical aspects of genetics and biomedical issues.

    General Support Organization Last Updated: 13 Nov 2018

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