Leiomyomatosis and renal cell cancer, hereditary

Support Type
Support Services
  • Hereditary Leiomyomatosis and Renal Cell Cancer (HLRCC) Family Alliance

    Families, Friends, Physicians, & Researchers working together
    to improve diagnosis, treatment, & quality of life for people affected by HLRCC and Fumarase Deficiency

    Disease Support Organization Last Updated: 30 Jan 2019
  • VHL Alliance

    VHLA is dedicated to research, education, and support to improve awareness, diagnosis, treatment, and quality of life for those affected by VHL.

    Disease Support Organization Last Updated: 13 Nov 2018
  • Contact a Family

    Contact a Family improves the lives of all families with disabled children. With them, we transform their lives, break down barriers and tackle disadvantage through ambitious, collaborative and innovative work. We make a real and lasting impact and are a force for positive change.

    General Support Organization Last Updated: 13 Nov 2018
  • Advocacy for Patients with Chronic Illness, Inc.

    To provide free information, advice and advocacy services to patients with chronic illnesses, in areas including health and disability insurance, Social Security disability, employment discrimination, school-based accommodations, and resource location.

    General Support Organization Last Updated: 13 Nov 2018
  • Any Baby Can, Inc.

    Any Baby Can serves families that have a child under the age of 13 with a chronic illnes, developmental delay or health risk, through case management and other support services.

    General Support Organization Last Updated: 13 Nov 2018

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