Localized scleroderma
Synonyms: Localized fibrosing scleroderma
Localized scleroderma is the skin localized form of scleroderma (see this term) characterized by fibrosis of the skin causing cutaneous plaques or strips.
Data from Orphanet are used to provide information on a disease's name, synonym(s), and overview.
Reference: Access aggregated data from Orphanet at Orphadata.
Orphadata: Free access data from Orphanet. © INSERM 1999. Available on http://www.orphadata.org. Data version April 2024
Newly diagnosed with
Localized scleroderma?
Our RARE Concierge Services Guides are available to assist you by providing information, resources and connections as you navigate your rare disease journey.
Advocacy Organizations
Ann Steffens Scleroderma Research Foundation, Inc.
- Support and promote research toward treatment and cure of scleroderma, Degos disease, and other related disorders - Promote awareness and understanding of these disorders, especially among health-care professionals - Encourage collaborative efforts, nationally and internationally, aimed at realizing these goals
National Scleroderma Foundation
Our mission is to advance medical research, promote disease awareness, and provide support and education to people with scleroderma, their families and support network.
Project Clio
To improve our understanding of rare and understudied autoimmune conditions
Project Scleroderma
To raise awareness for Scleroderma by way of documentary films/videos, educating and inspiring support of research.
Scleroderma Canada
Vision: Improved quality of life for scleroderma patients and their families through education, support, research and increased public awareness. Mission: The Scleroderma Society of Ontario is committed to promoting increased public awareness, advancing patient wellness and supporting research in scleroderma.
Scleroderma Foundation of California
We want all scleroderma patients to receive an accurate and timely diagnosis, and access to care and support for those who require it, until we find a cure. Our mission is to EMPOWER the scleroderma community to live BETTER lives through programs dedicated to SUPPORT, EDUCATION, and RESEARCH
Scleroderma Research Foundation
The mission of the Scleroderma Research Foundation (SRF) is to fund and facilitate the most promising, highest quality research aimed at improved therapies and, ultimately, a cure for scleroderma.
UNITED FOR SCLERODERMA Foundation
To assist the newly diagnosed Scleroderma patients
Clinical Trials
For a list of clinical trials in this disease area, please click here.