• To improve the lives of patients, their families and carers by providing support, advice and information.
• To increase the awareness of Raynaud’s and Scleroderma amongst healthcare professionals, Government and Statutory agencies and the general public.
• To work in partnership with appropriate healthcare professionals and agencies to promote and co-ordinate the attainment of the objectives of the strategy.
• Maintain a working environment that fosters communication, teamwork and diversity among all members of staff- permanent, temporary and voluntaryDisease Support Organization Last Updated: 30 Jan 2019
Contact a Family improves the lives of all families with disabled children. With them, we transform their lives, break down barriers and tackle disadvantage through ambitious, collaborative and innovative work. We make a real and lasting impact and are a force for positive change.General Support Organization Last Updated: 13 Nov 2018
To provide free information, advice and advocacy services to patients with chronic illnesses, in areas including health and disability insurance, Social Security disability, employment discrimination, school-based accommodations, and resource location.General Support Organization Last Updated: 13 Nov 2018
Any Baby Can serves families that have a child under the age of 13 with a chronic illnes, developmental delay or health risk, through case management and other support services.General Support Organization Last Updated: 13 Nov 2018
When a child dies, at any age, the family suffers intense pain and may feel hopeless and isolated. The Compassionate Friends provides highly personal comfort, hope, and support to every family experiencing the death of a son or a daughter, a brother or a sister, or a grandchild, and helps others better assist the grieving family.General Support Organization Last Updated: 13 Nov 2018