Multiple sulfatase deficiency

Support Type
Support Services
  • The United MSD Foundation

    The United MSD Foundation advocates for, supports, and funds biomedical research to cure Multiple Sulfatase Deficiency (MSD) and avails its research to cure other lysosomal storage diseases.

    Disease Support Organization Last Updated: 27 Jul 2020
  • Foundation for Women & Girls with Blood Disorders

    The Foundation for Women & Girls with Blood Disorders works to ensure all women and girls with blood disorders are correctly diagnosed and optimally managed at every life stage.

    FWGBD:
    Raises awareness and educates key healthcare professionals
    Translates and disseminates information and research
    Nurtures future healthcare leaders
    Fosters collaboration and generates knowledge among core disciplines

    Disease Support Organization Last Updated: 11 Mar 2020
  • MLD Foundation

    We C.A.R.E.™ – The MLD Foundation’s global mission is reflected in four areas of purpose that start with people and families … facilitating Compassion, increasing Awareness, influencing Research, and promoting Education for metachromatic leukodystrophy.

    We are active in rare disease advocacy, newborn screening, registries, FDA policy, and “educate” regularly on Capitol Hill.

    The MLD Foundation collaborates with other leukodystrophy and lysosomal disease organizations globally. We are also quite active in global rare disease issues.

    Disease Support Organization Last Updated: 30 Jan 2019

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