Pelizaeus-Merzbacher disease

Support Type
Support Services
  • The PMD Foundation, Inc.

    A family driven foundation proactively serving those affected by Pelizaeus-Merzbacher Disease (the PMD community) by supporting programs of education, research, service and advocacy. We are dedicated to providing patients and their families with information about their disease and assistance in identifying sources of medical care, social service, and genetic counseling; establishing a communications network among families; increasing public awareness and acting as an information source for health care providers; and promoting research into causes, treatment, prevention and cure of PMD.

    Disease Support Organization Last Updated: 30 Jan 2019
  • The Stennis Foundation

    Raising awareness of the Leukodystrophies, and raising funds for Leukodystrophies research.

    Disease Support Organization Last Updated: 30 Jan 2019
  • Contact a Family

    Contact a Family improves the lives of all families with disabled children. With them, we transform their lives, break down barriers and tackle disadvantage through ambitious, collaborative and innovative work. We make a real and lasting impact and are a force for positive change.

    General Support Organization Last Updated: 13 Nov 2018
  • Advocacy for Patients with Chronic Illness, Inc.

    To provide free information, advice and advocacy services to patients with chronic illnesses, in areas including health and disability insurance, Social Security disability, employment discrimination, school-based accommodations, and resource location.

    General Support Organization Last Updated: 13 Nov 2018
  • Any Baby Can, Inc.

    Any Baby Can serves families that have a child under the age of 13 with a chronic illnes, developmental delay or health risk, through case management and other support services.

    General Support Organization Last Updated: 13 Nov 2018

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