Pompe disease

Support Type
Support Services
  • Acid Maltase Deficiency Association

    The Acid Maltase Deficiency Association, was formed to assist in funding research and to promote public awareness of Acid Maltase

    Disease Support Organization Last Updated: 30 Jan 2019
    Established: 1994 501(c)3 Nonprofit: No Medical Advisory Board: Yes
  • United Pompe Foundation

    The United Pompe Foundation was formed to assist patients and/or their families with medical costs and other expenses that these

    Disease Support Organization Last Updated: 30 Jan 2019
    Established: 2002 501(c)3 Nonprofit: Yes Medical Advisory Board: No
  • Association for Glycogen Storage Disease

    The purpose of the Association for Glycogen Storage Disease shall be to protect and promote the best interests of all

    Disease Support Organization Last Updated: 30 Jan 2019
    Established: 1979 501(c)3 Nonprofit: Yes Medical Advisory Board: Yes
  • LGMD-diagnosis.org

    LGMD-diagnosis.org is sponsored by a consortium of family foundations that each focus on a separate form of LGMD. By coming

    Disease Support Organization Last Updated: 30 Jan 2019
    Established: 2014 501(c)3 Nonprofit: No Medical Advisory Board: No
  • Cochrane Collaboration

    The Cochrane Collaboration is an international network of healthcare professionals, researchers and consumers preparing, maintaining, and disseminating high quality systematic

    Disease Support Organization Last Updated: 30 Jan 2019
    Established: 1995 501(c)3 Nonprofit: No Medical Advisory Board: No

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