Sandhoff disease

Support Type
Support Services
  • National Tay-Sachs & Allied Diseases Association, Inc.

    The mission of the National-Tay Sachs & Allied Diseases Association is to lead the fight to treat and cure Tay-Sachs, Canavan and related genetic diseases and to support affected families and individuals in leading fuller lives.

    Disease Support Organization Last Updated: 30 Jan 2019
  • Pediatric Brain Foundation

    Pediatric Brain Foundation’s Mission is Three-fold:
    1. Expedite scientific research to find treatments and cures for ALL of the more than 14 million children, in the U.S. alone, living with some form of neurological disorder

    2. Provide families and health care professionals with up-to-date information and resources on the latest discoveries in pediatric neurology

    3. Educate the public and public officials on the critical importance of funding pediatric neurological research

    Disease Support Organization Last Updated: 13 Nov 2018
  • Contact a Family

    Contact a Family improves the lives of all families with disabled children. With them, we transform their lives, break down barriers and tackle disadvantage through ambitious, collaborative and innovative work. We make a real and lasting impact and are a force for positive change.

    General Support Organization Last Updated: 13 Nov 2018
  • Advocacy for Patients with Chronic Illness, Inc.

    To provide free information, advice and advocacy services to patients with chronic illnesses, in areas including health and disability insurance, Social Security disability, employment discrimination, school-based accommodations, and resource location.

    General Support Organization Last Updated: 13 Nov 2018
  • Any Baby Can, Inc.

    Any Baby Can serves families that have a child under the age of 13 with a chronic illnes, developmental delay or health risk, through case management and other support services.

    General Support Organization Last Updated: 13 Nov 2018

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