Segawa syndrome, autosomal recessive

Support Type
Support Services
  • Foundation for Women & Girls with Blood Disorders

    The Foundation for Women & Girls with Blood Disorders works to ensure all women and girls with blood disorders are correctly diagnosed and optimally managed at every life stage.

    FWGBD:
    Raises awareness and educates key healthcare professionals
    Translates and disseminates information and research
    Nurtures future healthcare leaders
    Fosters collaboration and generates knowledge among core disciplines

    Disease Support Organization Last Updated: 11 Mar 2020
  • Pediatric Neurotransmitter Disease Association

    Our mission is to help children and families who are affected by PNDs,
    support the identification of new PNDs, find better treatments and
    ultimately a cure for those diseases that are already known.

    Disease Support Organization Last Updated: 10 Dec 2018

Connect. Empower. Inspire.