Whistling face syndrome

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Study of Quality of Life in Freeman-Sheldon Syndrome and Related Conditions
Status:
Terminated
Last Changed:
Apr 4, 2017
First Changed:
Mar 3, 2011
Disease(s):
Arthrogryposis
Intervention(s):
PTSD Checklist-SpecificModified Flanagan Quality of Life ScaleCenter for Epidemiologic Studies Depression ScaleFunctional Enquiry FormStrength, Joint ROM, Girth and Length MeasurementsStudy Physical ExaminationPTSD, Depression, and FSS-Focused ExaminationFreeman-Sheldon Specific Quality of Life SurveyLactate, Glucose, and Adenosine Triphosphate Blood Levels
Study of Resting and Exercising Body Functioning in Freeman-Sheldon Syndrome and Related Conditions
Status:
Not yet recruiting
Last Changed:
Apr 2, 2018
First Changed:
Mar 2, 2011
Disease(s):
Arthrogryposis
Intervention(s):
Lactate, Glucose, and Adenosine Triphosphate Blood LevelsPhysiological Stress TestFunctional Enquiry FormStrength, Joint ROM, Girth and Length MeasurementsStudy Physical ExaminationObservational Gait AnalysisMental Health Interview
Survey Study and Records Review of Treatment Outcomes in Freeman-Sheldon Syndrome
Status:
Recruiting
Last Changed:
Apr 2, 2018
First Changed:
Jun 16, 2010
Disease(s):
Freeman-Sheldon Syndrome
Intervention(s):
PTSD Checklist-Civilian (PCL-C)Modified Flanagan Quality of Life ScaleCenter for Epidemiologic Studies Depression Scale (CES-D)Functional Enquiry (or Review of Systems) FormStudy of Therapeutic Outcomes and Practices in Freeman-Sheldon Syndrome (STOP-FSS) QuestionnaireFSRG Semi-Structured Quality of Life Interview (FSRG SSQLI)Medical Records Review

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