White-Sutton syndrome

Support Type
Support Services
  • White Sutton Syndrome Foundation

    The mission of the White Sutton Syndrome Foundation is to build a community that will improve the quality of life for those diagnosed with White Sutton Syndrome and their families, to educate others about this condition and to fund research in order to better understand its symptoms, treatments and prognosis.

    Disease Support Organization Last Updated: 18 Jun 2020
  • Simons Searchlight

    Simons Searchlight is a partnership of leading scientists, doctors and families on a mission. We are a non-profit, online community that studies over 100 genes that are associated with autism and other neurodevelopmental disorders. You or your family member needs a genetically confirmed diagnosis of one of these genetic conditions to join.

    We invite you to check our website and encourage you to register today! Please contact us at 1-855-329-5638 or [email protected] for more information.

    Disease Support Organization Last Updated: 11 Mar 2020
  • Foundation for Women & Girls with Blood Disorders

    The Foundation for Women & Girls with Blood Disorders works to ensure all women and girls with blood disorders are correctly diagnosed and optimally managed at every life stage.

    FWGBD:
    Raises awareness and educates key healthcare professionals
    Translates and disseminates information and research
    Nurtures future healthcare leaders
    Fosters collaboration and generates knowledge among core disciplines

    Disease Support Organization Last Updated: 11 Mar 2020

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