Acquired cystic disease-associated renal cell carcinoma

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A rare subtype of renal cell carcinoma ocurring in the context of end-stage kidney disease and acquired cystic kidney disease characterized by a usually well circumscribed solid multifocal bilateral tumor with inter- or intracellular microlumen formation (leading to cribiform architecture). Tumors are often diagnosed incidentally in early stages although complications caused by renal cysts (dull flank or abdominal pain fever) or renal parenchymal bleeding may mask the underlying neoplastic process. Most have an indolent behavior.

Data from Orphanet are used to provide information on a disease's name, synonym(s), and overview. Reference: Access aggregated data from Orphanet at Orphadata. Orphadata: Free access data from Orphanet. © INSERM 1999. Available on http://www.orphadata.org. Data version June 2024

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Acquired cystic disease-associated renal cell carcinoma?

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Advocacy Organizations

My Faulty Gene

My Faulty Gene is a nonprofit organization which provides information and assistance to any individual whose family medical history suggests genetic testing might be helpful in identifying an increased risk of disease due to a genetic mutation. We believe that everyone in need of genetic testing should have access to it.

My Little Sunshine Foundation

My Little Sunshine is a non-profit foundation dedicated to educating people about the importance of fertility preservation and making fertility resources accessible to all.

SALUS

Educate and provide resources to POC with Rare Cancers

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Clinical Trials

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