Actinic prurigo

Get in touch with RARE Concierge.

Contact RARE Concierge

Synonyms: Familial polymorphous light eruption of American Indians | Hereditary polymorphous light eruption of American Indians | Hutchinson summer prurigo | Hydroa aestivale

A rare chronic photodermatosis disease characterized by intensely pruritic polymorphic erythematous excoriated and/or lichenified papules macules plaques and nodules occurring on sun-exposed areas of the skin (particularly face nose lips and ears) frequently associating cheilitis (especially of the lower lip) and conjuctivitis which are present year-round or only in the spring/summer (depending on geographic location) observed mainly in Native Americans and Mestizos. Cheilitis may be the sole clinical presentation. Histologically the presence of lymphoid follicles in mucosa is pathognomonic.

Data from Orphanet are used to provide information on a disease's name, synonym(s), and overview. Reference: Access aggregated data from Orphanet at Orphadata. Orphadata: Free access data from Orphanet. © INSERM 1999. Available on Data version June 2024

Newly diagnosed with
Actinic prurigo?

Our RARE Concierge Services Guides are available to assist you by providing information, resources and connections as you navigate your rare disease journey.

Get Concierge Help

Clinical Trials

For a list of clinical trials in this disease area, please click here.