ALECT2 amyloidosis

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ALECT2 amyloidosis

Synonyms: Leukocyte chemotactic factor-2 amyloidosis

A rare systemic amyloidosis characterized by slowly progressive renal disease presenting with proteinuria hypertension and decreased glomerular filtration rate leading to progressive renal failure. Histology reveals amyloid deposits of leukocyte chemotactic factor-2 protein in the renal cortical interstitium tubular basement membranes glomeruli and the vessel walls. Extra-renal deposits can be seen in the liver lungs spleen and adrenal glands.

Data from Orphanet are used to provide information on a disease's name, synonym(s), and overview.

Reference: Access aggregated data from Orphanet at Orphadata.

Orphadata: Free access data from Orphanet. © INSERM 1999. Available on http://www.orphadata.org. Data version March 2024

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ALECT2 amyloidosis?

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Advocacy Organizations

New Zealand Amyloidosis Patients Association

To make a positive and lasting impact in New Zealand, helping Amyloidosis disease patients from various disease subgroups ( AL, AA, hATTR, Wild Type) by working with local and international doctors, pharma treatment entities, as well as government agencies to bring approved funded treatment drugs into NZ for suffering patients. We desire to help build a lasting support system within the NZ health framework. We want an excellent wrap-around network of care to achieve for the sufferer to achieve a positive outcome in their well-being. This mission includes the wellness of the patient's caregiver and family whose needs, we feel, have been neglected.

Clinical Trials

For a list of clinical trials in this disease area, please click here.