Amish infantile epilepsy syndrome
Synonyms: Infantile-onset symptomatic epilepsy syndrome-developmental stagnation-blindness syndrome
Newly diagnosed with
Amish infantile epilepsy syndrome?
Our RARE Concierge Services Guides are available to assist you by providing information, resources and connections as you navigate your rare disease journey.
Advocacy Organizations
Mickie’s Miracles
To help families get into Level IV Pediatric Epilepsy Centers for diagnosis and treatment urgently -- and provide support to families for every season of the pediatric epilepsy journey.
Clinical Trials
For a list of clinical trials in this disease area, please click here.