Aneurysm of sinus of Valsalva
A rare congenital heart malformation of one or more of the aortic sinuses consisting of a dilation that when unruptured is usually asymptomatic but when ruptured presents with progressive exertional dyspnea fatigue chest pain and that can lead to congestive heart failure if left untreated.
Data from Orphanet are used to provide information on a disease's name, synonym(s), and overview.
Orphadata: Free access data from Orphanet. © INSERM 1999. Available on http://www.orphadata.org. Data version December 2023
Newly diagnosed with
Aneurysm of sinus of Valsalva?
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Collaborative Research Advocacy for Vascular Anomalies Network (CaRAVAN)
As the research-based umbrella organization for all vascular anomalies, we are on a mission to develop a unified network of patients and their families, advocates, researchers, and clinicians who influence research from initial concept and design to patient care delivery
Project FAVA is a 501(c)(3) non-profit patient advocacy group that promotes awareness of fibro-adipose vascular anomalies, educates patients, their families, and the global community, and provides helpful resources to those with FAVA. Project FAVA also advances research to move the needle towards more effective and less invasive treatment options for FAVA patients.
For a list of clinical trials in this disease area, please click here.