Collecting duct carcinoma

Get in touch with RARE Concierge.

Contact RARE Concierge

Collecting duct carcinoma

Synonyms: BDC | Bellini carcinoma | Bellini duct carcinoma | CDC

Collecting duct carcinoma is a rare aggressive subtype of renal cell carcinoma which originates from the epithelium of the distal collecting ducts and usually manifests with hematuria flank pain palpable abdominal mass or nonspecific symptoms such as fatigue weight loss or fever. Patients are often asymptomatic for long periods of time and therefore disease is often locally advanced or metastatic at the time of diagnosis. In cases with metastatic spread bone pain cough dyspnea pneumonia or neurological compromise may be associated.

Data from Orphanet are used to provide information on a disease's name, synonym(s), and overview.

Reference: Access aggregated data from Orphanet at Orphadata.

Orphadata: Free access data from Orphanet. © INSERM 1999. Available on http: // Data version September 2023.

Newly diagnosed with
Collecting duct carcinoma?

Our RARE Concierge Services Guides are available to assist you by providing information, resources and connections as you navigate your rare disease journey.

Get Concierge Help

Advocacy Organizations

My Faulty Gene

My Faulty Gene is a nonprofit organization which provides information and assistance to any individual whose family medical history suggests genetic testing might be helpful in identifying an increased risk of disease due to a genetic mutation. We believe that everyone in need of genetic testing should have access to it.

My Little Sunshine Foundation

My Little Sunshine is a non-profit foundation dedicated to educating people about the importance of fertility preservation and making fertility resources accessible to all.


Educate and provide resources to POC with Rare Cancers

Clinical Trials

For a list of clinical trials in this disease area, please click here.