Congenital central hypoventilation syndrome

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Congenital central hypoventilation syndrome

Synonyms: CCHS | Congenital central alveolar hypoventilation syndrome | Ondine curse | Ondine syndrome

Congenital central hypoventilation syndrome (CCHS) is a rare disease due to a severely impaired central autonomic control of breathing and dysfunction of the autonomous nervous system.

Data from Orphanet are used to provide information on a disease's name, synonym(s), and overview.

Reference: Access aggregated data from Orphanet at Orphadata.

Orphadata: Free access data from Orphanet. © INSERM 1999. Available on Data version December 2023

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Congenital central hypoventilation syndrome?

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Advocacy Organizations

CCHS Network

Building Community, Empowering Patients, Championing Research. The CCHS Network has a multi-focused mission of education and support of our families and CCHS patients, inter-family and family-physician communication, and supporting and facilitating CCHS research. Our vision is a future where CCHS is no longer a life-threatening diagnosis!

Clinical Trials

For a list of clinical trials in this disease area, please click here.