Congenital lipoid adrenal hyperplasia due to STAR deficency

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Data from Orphanet are used to provide information on a disease's name, synonym(s), and overview.

Reference: Access aggregated data from Orphanet at Orphadata.

Orphadata: Free access data from Orphanet. © INSERM 1999. Available on http://www.orphadata.org. Data version March 2024

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Congenital lipoid adrenal hyperplasia due to STAR deficency?

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Advocacy Organizations

CARES Foundation (Congenital Adrenal hyperplasia Research, Education & Support Foundation )

CARES Foundation leads in the effort to improve the lives of the Congenital Adrenal Hyperplasia community and seeks to advance quality health care through support, advocacy, education and research.

Clinical Trials

For a list of clinical trials in this disease area, please click here.