Ectrodactyly-ectodermal dysplasia without clefting syndrome
Synonyms: EEC syndrome without cleft lip/palate
Newly diagnosed with
Ectrodactyly-ectodermal dysplasia without clefting syndrome?
Our RARE Concierge Services Guides are available to assist you by providing information, resources and connections as you navigate your rare disease journey.
Advocacy Organizations
National Foundation for Ectodermal Dysplasias
To empower and connect individuals touched by ectodermal dysplasias through education, support and research
Clinical Trials
For a list of clinical trials in this disease area, please click here.