Folliculotropic mycosis fungoides
Synonyms: Mycosis fungoides-associated follicular mucinosis
A rare variant of mycosis fungoides (MF) a form of cutaneous T-cell lymphoma characterized by the presence of folliculotropic infiltrates in patch-plaque lesions usually involving the head and neck area.
Data from Orphanet are used to provide information on a disease's name, synonym(s), and overview.
Reference: Access aggregated data from Orphanet at Orphadata.
Orphadata: Free access data from Orphanet. © INSERM 1999. Available on http: //www.orphadata.org. Data version September 2023.
Newly diagnosed with
Folliculotropic mycosis fungoides?
Our RARE Concierge Services Guides are available to assist you by providing information, resources and connections as you navigate your rare disease journey.
Advocacy Organizations
Cutaneous Lymphoma Foundation
We serve as the voice of the cutaneous lymphoma patient community that: Strives to empower people with CL and their care partners through impactful education and support services Influence decisions that can transform lives; and Promote research focused on addressing the most critical unmet needs
Cutaneous Lymphoma Foundation
We serve as the voice of the cutaneous lymphoma patient community that: Strives to empower people with CL and their care partners through impactful education and support services Influence decisions that can transform lives; and Promote research focused on addressing the most critical unmet needs
Care-for-Rare America Inc
To establish a global alliance in order to identify the genetic causes of rare diseases and develop effective treatments, following a three-stage approach: recognize, understand, cure.
Youth and Women for Opportunities Uganda-YWOU
Youth and Women for Opportunities-YWOU an organization that we represent is patient organization re-presentative, patient and institution and individual capacity builder supporting PLWRD’s to obtain diagnosis, treatment and drugs for those suffering consequences of being undiagnosed or misdiagnosed and lack treatment and those who lack precise diagnosis for rare, orphan and undiagnosed diseases preventing PLWRD’s accessing the most adapted care, treatment or surgery, have delayed access to the most appropriate care, treatment or surgery
My Faulty Gene
My Faulty Gene is a nonprofit organization which provides information and assistance to any individual whose family medical history suggests genetic testing might be helpful in identifying an increased risk of disease due to a genetic mutation. We believe that everyone in need of genetic testing should have access to it.
My Little Sunshine Foundation
My Little Sunshine is a non-profit foundation dedicated to educating people about the importance of fertility preservation and making fertility resources accessible to all.
SALUS
Educate and provide resources to POC with Rare Cancers
Help Hope Live
Help Hope Live assists individuals living with catastrophic injuries and illnesses to fundraise toward their medical expenses and related costs.
Clinical Trials
For a list of clinical trials in this disease area, please click here.