Heart defect-tongue hamartoma-polysyndactyly syndrome

Get in touch with RARE Concierge.

Contact RARE Concierge

Synonyms: Ostravik-Lindemann-Solberg syndrome

A rare genetic multiple congenital anomalies syndrome characterized by congenital heart defects (e.g. coarctation of the aorta with or without atrioventricular canal and subaortic stenosis) associated with tongue hamartomas postaxial hand polydactyly and toe syndactyly.

Data from Orphanet are used to provide information on a disease's name, synonym(s), and overview. Reference: Access aggregated data from Orphanet at Orphadata. Orphadata: Free access data from Orphanet. © INSERM 1999. Available on http://www.orphadata.org. Data version July 2024

Newly diagnosed with
Heart defect-tongue hamartoma-polysyndactyly syndrome?

Our RARE Concierge Services Guides are available to assist you by providing information, resources and connections as you navigate your rare disease journey.

Get Concierge Help

Advocacy Organizations

Don't see your organization here. Let us know here.

Clinical Trials

For a list of clinical trials in this disease area, please click here.