HELLP syndrome
Synonyms: Hemolysis, elevated liver enzymes, low platelets in pregnancy | Hemolysis-elevated liver enzymes-low platelets syndrome
A rare hemorrhagic disorder due to an acquired platelet anomaly characterized by hemolysis elevated liver enzymes and thrombocytopenia that affects pregnant or post-partum women and is frequently associated with severe preeclampsia. Symptoms are variable typically including right upper quadrant or epigastric abdominal pain nausea vomiting excessive weight gain generalized edema hypertension general malaise right shoulder pain backache and/or headache. Hepatic hemorrhage and rupture renal failure and pulmonary edema can result in maternal and/or fetal death.
Data from Orphanet are used to provide information on a disease's name, synonym(s), and overview.
Reference: Access aggregated data from Orphanet at Orphadata.
Orphadata: Free access data from Orphanet. © INSERM 1999. Available on http: //www.orphadata.org. Data version September 2023.
Newly diagnosed with
HELLP syndrome?
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Advocacy Organizations
3G SARL
Our mission is to design and/or implement information and communication technology solutions in the healthcare field.
Hemophilia Foundation of Southern California
“Improving the quality of life and building community for those living with inherited bleeding disorders in Southern California.”
Bleeding Disorders Alliance Illinois
The Bleeding Disorders Alliance Illinois exists to improve the quality of life for the inherited bleeding disorders community by supporting individuals and their families with unbiased information and resources which allows them to live healthy and active lives.
National Center of Hematology and Blood Transfusion
Treatment of patients with blood diseases,scientific-research works
Care-for-Rare America Inc
To establish a global alliance in order to identify the genetic causes of rare diseases and develop effective treatments, following a three-stage approach: recognize, understand, cure.
Youth and Women for Opportunities Uganda-YWOU
Youth and Women for Opportunities-YWOU an organization that we represent is patient organization re-presentative, patient and institution and individual capacity builder supporting PLWRD’s to obtain diagnosis, treatment and drugs for those suffering consequences of being undiagnosed or misdiagnosed and lack treatment and those who lack precise diagnosis for rare, orphan and undiagnosed diseases preventing PLWRD’s accessing the most adapted care, treatment or surgery, have delayed access to the most appropriate care, treatment or surgery
Clinical Trials
For a list of clinical trials in this disease area, please click here.