Hydroa vacciniforme-like lymphoma

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Hydroa vacciniforme-like lymphoma

Synonyms: Angiocentric cutaneous T-cell lymphoma of childhood | HVLL | Hydroa-like cutaneous T-cell lymphoma

A very rare Epstein-Barr virus-associated lymphoproliferative disorder characterized by a chronic recurrent vesiculopapular rash which subsequently ulcerates and scars located mainly on sun-exposed areas and which is associated with systemic manifestations such as fever weight loss asthenia facial edema arthralgia lymphadenopathy hepatosplenomegaly and/or increased liver enzymes. Hypersensitivity to mosquito bites has been associated and an increased risk of developing systemic lymphoma has been reported.

Data from Orphanet are used to provide information on a disease's name, synonym(s), and overview.

Reference: Access aggregated data from Orphanet at Orphadata.

Orphadata: Free access data from Orphanet. © INSERM 1999. Available on http://www.orphadata.org. Data version February 2024

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Hydroa vacciniforme-like lymphoma?

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Advocacy Organizations

My Faulty Gene

My Faulty Gene is a nonprofit organization which provides information and assistance to any individual whose family medical history suggests genetic testing might be helpful in identifying an increased risk of disease due to a genetic mutation. We believe that everyone in need of genetic testing should have access to it.

My Little Sunshine Foundation

My Little Sunshine is a non-profit foundation dedicated to educating people about the importance of fertility preservation and making fertility resources accessible to all.


Educate and provide resources to POC with Rare Cancers

Youth And Women for Opportunities Uganda-YWOU

Our mission supports Rare, orphan and undiagnosed diseases diagnosis, care and treatment, education, awareness and empowering health care professionals and patients care takers of rare, orphan and undiagnosed diseases arena in Uganda, build capacity and bridge lack of clinical knowledge and experience and provide search/quest for diagnostic laboratories, I advocate for changes in laws, practices

Clinical Trials

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