Juvenile dermatomyositis

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Juvenile dermatomyositis

Synonyms: Juvenile DM

An early-onset form of dermatomyositis (DM) a systemic autoimmune inflammatory muscle disorder with vasculopathy characterized by proximal and symmetrical muscle weakness evocative skin lesions and systemic manifestations. Vasculopathy occurs in the skin muscle (mainly in the perifascicular area) and sometimes in the intestinal tissue.

Data from Orphanet are used to provide information on a disease's name, synonym(s), and overview.

Reference: Access aggregated data from Orphanet at Orphadata.

Orphadata: Free access data from Orphanet. © INSERM 1999. Available on http: //www.orphadata.org. Data version September 2023.

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Juvenile dermatomyositis?

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Advocacy Organizations

Cure JM Foundation

​ Our mission; This site is dedicated to providing  accessible, confidential, system of support and advocacy; education; and community outreach and partnerships. Our integrated, comprehensive approach respects the individuality and diversity of the fibromyalgia community. ​ A site to help those with fibromyalgia and chronic pain. The site is here to help patients, families, care givers. We invite you to use the site as a tool in coping with fibromyalgia and chronic pain. There are many resources regarding Fibromyalgia, Chronic Pain and the other diagnosis that come along with Fibromyalgia. Our goal is to help members and bring more awareness to chronic pain. ​

Breathe Support Network

MISSION STATEMENT The Breathe Support Networks mission is to provide support and education for pulmonary fibrosis patients and their families, helping them to better #LIVEwithPF. This includes, but is not limited to: - education about pulmonary fibrosis - guiding patients and families on how to talk to their healthcare team - providing tips to live a healthier more productive life - providing information about other pulmonary fibrosis resources

Association Aux Pas du Coeur

Our organization wants to raise awareness and recognize rare diseases in Côte d'Ivoire. Our mission is to: Raising awareness and campaigning to help with the diagnosis and free therapeutic care of patients. Request and/or contribute to actions relating to the training of the medical profession so that doctors are able to make a final diagnosis and ensure the continuous follow-up of patients. Create a patient registry to establish very precise statistics of rare diseases in Côte d'Ivoire. Create a close-knit patient community. Break the isolation and despair of sick people and their families. Open up to the world and actively contribute to international research aimed at treatments.

Clinical Trials

For a list of clinical trials in this disease area, please click here.