Lipoblastoma
A rare soft tissue tumor characterized by a lobulated localized (lipoblastoma) or diffuse (lipoblastomatosis) lesion resembling fetal adipose tissue composed of mature and immature adipocytes. It is most commonly found during the first years of life and presents as a slowly growing well circumscribed mass which may compress adjacent structures depending on the location. Malignant transformation or metastasis does not occur while recurrences are described especially in lipoblastomatosis.
Data from Orphanet are used to provide information on a disease's name, synonym(s), and overview.
Reference: Access aggregated data from Orphanet at Orphadata.
Orphadata: Free access data from Orphanet. © INSERM 1999. Available on http: //www.orphadata.org. Data version September 2023.
Newly diagnosed with
Lipoblastoma?
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Advocacy Organizations
My Faulty Gene
My Faulty Gene is a nonprofit organization which provides information and assistance to any individual whose family medical history suggests genetic testing might be helpful in identifying an increased risk of disease due to a genetic mutation. We believe that everyone in need of genetic testing should have access to it.
My Little Sunshine Foundation
My Little Sunshine is a non-profit foundation dedicated to educating people about the importance of fertility preservation and making fertility resources accessible to all.
SALUS
Educate and provide resources to POC with Rare Cancers
Help Hope Live
Help Hope Live assists individuals living with catastrophic injuries and illnesses to fundraise toward their medical expenses and related costs.
Clinical Trials
For a list of clinical trials in this disease area, please click here.