Lymphangioleiomyomatosis

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Lymphangioleiomyomatosis

Synonyms: LAM

A rare multiple cystic lung disease characterized by progressive cystic destruction of the lung and lymphatic abnormalities frequently associated with renal angiomyolipomas (AMLs).

Data from Orphanet are used to provide information on a disease's name, synonym(s), and overview.

Reference: Access aggregated data from Orphanet at Orphadata.

Orphadata: Free access data from Orphanet. © INSERM 1999. Available on http://www.orphadata.org. Data version March 2024

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Lymphangioleiomyomatosis?

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Advocacy Organizations

Breathe Support Network

MISSION STATEMENT The Breathe Support Networks mission is to provide support and education for pulmonary fibrosis patients and their families, helping them to better #LIVEwithPF. This includes, but is not limited to: - education about pulmonary fibrosis - guiding patients and families on how to talk to their healthcare team - providing tips to live a healthier more productive life - providing information about other pulmonary fibrosis resources

Frank Mccormack

The LAM Foundation urgently seeks safe and effective treatments, and ultimately a cure , for Lymphangioleiomyomatosis (LAM) through advocacy and the funding of promising research. We are dedicated to serving the scientific, medical and patient communities by offering information, resources and a worldwide network of hope and support.

Clinical Trials

For a list of clinical trials in this disease area, please click here.