Multiple symmetric lipomatosis

Get in touch with RARE Concierge.

Contact RARE Concierge

Synonyms: Cephalothoracic lipodystrophy | Familial benign cervical lipomatosis | Launois-Bensaude lipomatosis | Madelung disease

A rare subcutaneous tissue disease characterized by growth of symmetric non-encapsulated masses of adipose tissue mostly around the face and neck with variable clinical repercussions (e.g. reduced neck mobility compression of respiratory structures).

Data from Orphanet are used to provide information on a disease's name, synonym(s), and overview. Reference: Access aggregated data from Orphanet at Orphadata. Orphadata: Free access data from Orphanet. © INSERM 1999. Available on http://www.orphadata.org. Data version July 2024

Newly diagnosed with
Multiple symmetric lipomatosis?

Our RARE Concierge Services Guides are available to assist you by providing information, resources and connections as you navigate your rare disease journey.

Get Concierge Help

Clinical Trials

For a list of clinical trials in this disease area, please click here.