Non-functioning paraganglioma

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Synonyms: Non-secreting paraganglioma

A rare neuroendocrine tumor arising from neural crest-derived paraganglion cells (most often in the para-aortic region at the level of renal hilia organ of Zuckerkandl thoracic paraspinal region bladder and carotid body) not associated with catecholamine secretion. These tumors are usually clinically silent and symptoms if present are nonspecific and depend on the location of the tumor. Association with certain hereditary cancer-predisposing syndromes such as multiple endocrine neoplasia neurofibromatosis type 1 or von Hippel lindau syndrome may be observed.

Data from Orphanet are used to provide information on a disease's name, synonym(s), and overview. Reference: Access aggregated data from Orphanet at Orphadata. Orphadata: Free access data from Orphanet. © INSERM 1999. Available on http://www.orphadata.org. Data version June 2024

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Advocacy Organizations

The National Adrenal Diseases Foundation

The National Adrenal Diseases Foundation informs, educates, and supports those with adrenal disease and their families to improve their quality of life. Our goals are: To stop death from undiagnosed Addison’s disease. To improve life quality of those who suffer from adrenal disease. To promote the study of adrenal disease to improve treatment and find cures.

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Clinical Trials

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