Synonyms: Non-secreting paraganglioma
A rare neuroendocrine tumor arising from neural crest-derived paraganglion cells (most often in the para-aortic region at the level of renal hilia organ of Zuckerkandl thoracic paraspinal region bladder and carotid body) not associated with catecholamine secretion. These tumors are usually clinically silent and symptoms if present are nonspecific and depend on the location of the tumor. Association with certain hereditary cancer-predisposing syndromes such as multiple endocrine neoplasia neurofibromatosis type 1 or von Hippel lindau syndrome may be observed.
Data from Orphanet are used to provide information on a disease's name, synonym(s), and overview.
Orphadata: Free access data from Orphanet. © INSERM 1999. Available on http: //www.orphadata.org. Data version September 2023.
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Pheo Para Alliance
Our mission is to empower patients with pheochromocytoma or paraganglioma, their families and medical professionals through advocacy, education and a global community of support, while helping to advance research that accelerates treatments and cures.
Adrenal Alternatives Foundation
Advocacy & Access for all cortisol care.
My Faulty Gene
My Faulty Gene is a nonprofit organization which provides information and assistance to any individual whose family medical history suggests genetic testing might be helpful in identifying an increased risk of disease due to a genetic mutation. We believe that everyone in need of genetic testing should have access to it.
My Little Sunshine Foundation
My Little Sunshine is a non-profit foundation dedicated to educating people about the importance of fertility preservation and making fertility resources accessible to all.
Educate and provide resources to POC with Rare Cancers
Help Hope Live
Help Hope Live assists individuals living with catastrophic injuries and illnesses to fundraise toward their medical expenses and related costs.
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