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Pineocytoma is the least aggressive form of pineal parenchymal tumors manifesting with symptoms such as Parinaud’s syndrome (a group of eye movement abnormalities and pupil dysfunction including deficiency in upward-gaze and convergence-retraction nystagmus) headaches balance impairment urinary incontinence and changes in mood and that are not known to disseminate in a diffuse manner. They are usually associated with a good prognosis.

Data from Orphanet are used to provide information on a disease's name, synonym(s), and overview.

Reference: Access aggregated data from Orphanet at Orphadata.

Orphadata: Free access data from Orphanet. © INSERM 1999. Available on Data version December 2023

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Advocacy Organizations

My Faulty Gene

My Faulty Gene is a nonprofit organization which provides information and assistance to any individual whose family medical history suggests genetic testing might be helpful in identifying an increased risk of disease due to a genetic mutation. We believe that everyone in need of genetic testing should have access to it.

My Little Sunshine Foundation

My Little Sunshine is a non-profit foundation dedicated to educating people about the importance of fertility preservation and making fertility resources accessible to all.


Educate and provide resources to POC with Rare Cancers

Clinical Trials

For a list of clinical trials in this disease area, please click here.