A rare acquired pituitary hormone deficiency characterized by combination of headache visual field defects that correlate with cyst size and pituitary dysfunction. Most frequent hormonal manifestations are hypogonadism with amenorrhea/impotence or low libido and galactorrhea.
Data from Orphanet are used to provide information on a disease's name, synonym(s), and overview. Reference: Access aggregated data from Orphanet at Orphadata. Orphadata: Free access data from Orphanet. © INSERM 1999. Available on http://www.orphadata.org. Data version September 2024
Newly diagnosed with
Pituitary deficiency due to Rathke cleft cysts?
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Advocacy Organizations
Raymond A. Wood Foundation
Our mission is to empower survivors of craniopharyngioma and hypothalamic-pituitary brain tumors with an improved quality of life by providing access to education, technology, and evolving treatments.
Syndromes Without A Name (SWAN) Australia
Provide information, support and advocacy to families caring for a child with an undiagnosed or rare genetic condition.
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Clinical Trials
For a list of clinical trials in this disease area, please click here.