Rubella panencephalitis

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Rubella panencephalitis

A rare chronic encephalitis developing up to several years after congenital rubella virus infection or rubella infection in childhood characterized by slowly progressive wide-spread neurological symptoms like cognitive decline cerebellar ataxia spasticity and seizures amongst others. Progredient deterioration of the neurological disease eventually leads to the death of the patient.

Data from Orphanet are used to provide information on a disease's name, synonym(s), and overview.

Reference: Access aggregated data from Orphanet at Orphadata.

Orphadata: Free access data from Orphanet. © INSERM 1999. Available on Data version May 2024

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Rubella panencephalitis?

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Advocacy Organizations

Aicardi-Goutieres Syndrome Advocacy Association

AGSAA is a global coalition of deeply dedicated parent advocates working alongside clinicians, researchers, and scientists. We are united in our desire to improve the lives of individuals and families living with Aicardi-Goutières Syndrome and those yet to be diagnosed. Everything we do reflects a sense of urgency to rescue patient potential and preserve quality of life through accelerating research and providing timely emotional and educational support alongside evolving clinical care recommendations to affected families.

Clinical Trials

For a list of clinical trials in this disease area, please click here.