Subacute sclerosing leukoencephalitis
Synonyms: Dawson encephalitis | SSPE | Subacute inclusion body encephalitis | Subacute sclerosing panencephalitis | Van Bogaert disease | Van Bogaert encephalitis
A chronic progressive encephalitis that develops a few years after measles infection and presents with a demyelination of the cerebral cortex.
Data from Orphanet are used to provide information on a disease's name, synonym(s), and overview.
Reference: Access aggregated data from Orphanet at Orphadata.
Orphadata: Free access data from Orphanet. © INSERM 1999. Available on http://www.orphadata.org. Data version December 2023
Newly diagnosed with
Subacute sclerosing leukoencephalitis?
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Advocacy Organizations
Aicardi-Goutieres Syndrome Advocacy Association
AGSAA is a global coalition of deeply dedicated parent advocates working alongside clinicians, researchers, and scientists. We are united in our desire to improve the lives of individuals and families living with Aicardi-Goutières Syndrome and those yet to be diagnosed. Everything we do reflects a sense of urgency to rescue patient potential and preserve quality of life through accelerating research and providing timely emotional and educational support alongside evolving clinical care recommendations to affected families.
COMBINEDBrain Inc
COMBINEDBrain is a consortium for outcome measures and biomarkers for neurodevelopmental disorders. We are collaborating to cure rare, non-verbal brain disorders.
Encephalitis Society
We are an international charity and the only resource of our kind in the world, dedicated to supporting those affected by encephalitis, their families and professionals involved in their care. Our work involves support, information, awareness and research.
Genetic Epilepsy Team Australia
Collaboration of research and care
Moonshots for Unicorns
Curing single-gene disorders
Project CASK
To fund research for treatment and/or a cure for CASK Gene Disorder
Clinical Trials
For a list of clinical trials in this disease area, please click here.