Tubulocystic renal cell carcinoma

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Tubulocystic renal cell carcinoma

Tubulocystic renal cell carcinoma is an extremely rare subtype of renal cell carcinoma most frequently characterized by a small solitary well-circumscribed unencapsulated renal tumor composed of multiple small to medium-sized cysts with a white or gray spongy (“bubble wrap-like”) cut surface. Patients are usually asymptomatic or could manifest with abdominal pain abdominal distension and/or hematuria. Progression recurrence and metastasis rarely occur although lymph node bone pleura and liver metastases have been reported.

Data from Orphanet are used to provide information on a disease's name, synonym(s), and overview.

Reference: Access aggregated data from Orphanet at Orphadata.

Orphadata: Free access data from Orphanet. © INSERM 1999. Available on http: //www.orphadata.org. Data version September 2023.

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Tubulocystic renal cell carcinoma?

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Advocacy Organizations

My Faulty Gene

My Faulty Gene is a nonprofit organization which provides information and assistance to any individual whose family medical history suggests genetic testing might be helpful in identifying an increased risk of disease due to a genetic mutation. We believe that everyone in need of genetic testing should have access to it.

My Little Sunshine Foundation

My Little Sunshine is a non-profit foundation dedicated to educating people about the importance of fertility preservation and making fertility resources accessible to all.


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Clinical Trials

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