Vulvovaginal gingival syndrome
A rare non-malformative vulvovaginal disease characterized by a combination of erosive or desquamative lichen planus (LP) of vulval vaginal and gingival mucosae with a high propensity for scarring and stricture formation. Additional sites of involvement are frequently observed (in particular tongue buccal mucosae skin and perianal LP). Patients may be asymptomatic or more commonly present with pain burning discomfort and bleeding dyspareunia and seropurulent vaginal discharge.
Data from Orphanet are used to provide information on a disease's name, synonym(s), and overview.
Reference: Access aggregated data from Orphanet at Orphadata.
Orphadata: Free access data from Orphanet. © INSERM 1999. Available on http://www.orphadata.org. Data version December 2023
Newly diagnosed with
Vulvovaginal gingival syndrome?
Our RARE Concierge Services Guides are available to assist you by providing information, resources and connections as you navigate your rare disease journey.
Advocacy Organizations
The Fairy Goddess Mother Project Inc.
The Fairy Goddess Mother Project is a 501(c)(3) Non-profit Rare Disease Patient Advocacy Organization dedicated to increasing awareness of the little-known, often misdiagnosed disease Vulvar Lichen Sclerosus (VLS), providing financial assistance to afflicted women in need of treatment, and supporting patients’ efforts to participate in clinical trials.
the fairy goddess mother project inc
The Fairy Goddess Mother Project is dedicated to increasing awareness of Vulvar Lichen Sclerosus (VLS), providing financial assistance to women needing treatment, and supporting patient’s efforts to participate in clinical trials.
Clinical Trials
For a list of clinical trials in this disease area, please click here.