Global Genes is a 501c3, non-profit whose mission is to to eliminate the challenges of Rare Disease. We build awareness, educate the global community, and provide critical connections and resources that equip advocates to become activists for their disease.


Global Genes® is currently seeking qualified candidates for the following position:


Manager, Meetings & Events
Posting Date: January 18, 2018

Posting Details: Posting open until position filled. Potential candidates should follow submission guidelines and will be contacted directly for interview dates.

Position: Global Genes has developed a significant number of awareness and outreach programs, as well as collaborative partnerships with patient organizations, industry, clinicians, and advocates. Reporting to the Chief Financial Officer, the Manager, Meeting and Events is responsible for managing the planning, execution, and implementation of the Global Genes Annual Patient Advocacy Summit, Rare in the Square, Patient Meetings, Denim Dash, Rare Carousel of Dreams, and other fundraising events and program meetings and events as needed.

Click here for full job description.