February 18, 2020
Our Odyssey Philly Young Adult Meet Up
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February 18, 2020
Rare Disease Day San Jose
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February 5, 2020
Rare Disease Day at Coriell
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January 24, 2020
Ultragenyx Rare Family Day 2020
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January 16, 2020
WEBINAR – The Basics about Clinical Trials
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January 16, 2020
Calgary Patient Support Meeting
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January 15, 2020
14th Annual Patient Education Day & AGM
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January 15, 2020
Rare Disease Day Educational Conference at University of Michigan
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January 14, 2020
Cell & Gene Medicine Workshop for Patient Organization Leaders: “Equipped to Inform”
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