MTM-CNM Family Connection, Inc.

Our MTM-CNM Family Conference gathers families affected by Myotubular Myopathy and all Centronuclear Myopathies together along with lead medical professionals in our rare disease to help unify and strengthen our community. We provide a unique opportunity for families, researchers, medical professionals, and pharma industry stakeholders to come together, collaborate in person, and move our rare disease community forward . We also strive to connect patient families to research, share vital resources about how to live with these rare diseases, honor our loved ones that have been lost to these diseases, and foster life-enhancing and supportive relationships among families. You can read more about our organization and our previous conferences on our website

From: 07/19/2019 - To: 07/21/2019

All day event

St Louis, Missouri, United States of America