Jodi Edgar Reinhardt

The National Foundation for Ectodermal Dysplasias (NFED) Family Conference is for everyone affected by ectodermal dysplasias and their loved ones. Come and spend three full days that will enhance your life!

Our caring staff and families will welcome you to the Windy City with open arms and understanding. You will quickly experience–not just know–that you are not alone. You will develop a support network of others affected by ectodermal dysplasias and learn from their practical tips and ideas.

Meet medical and dental experts and have the unique opportunity to talk with them one-on-one to ask questions. They are not just knowledgeable but compassionate. Discuss recommended treatment options and ways to cope with the emotional challenges of ectodermal dysplasias. Learn how to advocate for yourself, for your loved one and for the entire ectodermal dysplasias community.

You also can share your insights and story to inspire and help others. Stay in the know by hearing the latest research developments for your type of ectodermal dysplasia. While parents and adults are participating in sessions, kids and teens are kept busy with activities in Kays’ Kids Camp and Teen Program.

From: 07/12/2019 - To: 07/14/2019

All day event

10 Marriott Drive, Lincolnshire, Illinois, United States of America

Featured Speakers

J. Timothy Wright, DDS, MS
Distinguished Professor
Dr. Wright is a professor at the University of North Carolina School of Dentistry. He earned his DDS at West Virginia University School of Dentistry in 1978 and his Masters in Pediatric Dentistry at the University of Alabama at Birmingham (UAB) in 1983. He completed a Postdoctoral Fellow in Cardiology Research and a Teacher Training Fellowship in Medical Genetics in 1984 also at UAB. Dr. Wright was an Associate Professor at UAB School of Dentistry from 1983 to 1990 before joining the faculty at the University of North Carolina at Chapel Hill’s School of Dentistry. Dr. Wright has served as a Visiting Professor at Mahidol University, Bangkok, Thailand, and the University of the West Indies, St Augustine, Trinidad. He’s received numerous research awards for his work, including the National Foundation for Ectodermal Dysplasias’ Kenneth S. Brown Research Award. His primary research interests involve understanding the molecular mechanisms involved in craniofacial development and tooth formation. In addition to understanding fundamental developmental control mechanisms, he is interested in characterizing the structural and compositional alterations in the craniofacial tissues resulting from hereditary conditions and environmental challenges. He has extensively studied a variety of conditions that affect the teeth and craniofacial structures including hereditary conditions such as ectodermal dysplasia, epidermolysis bullosa, amelogenesis imperfecta and the tricho-dento-osseous syndrome. He has more published more than 110 publication and 120 abstracts and made more than 150 international, national, and local scientific presentations. He is a member of the NFED Board of Directors and Scientific Advisory Council.