Jodi Edgar Reinhardt
The National Foundation for Ectodermal Dysplasias (NFED) Family Conference is for everyone affected by ectodermal dysplasias and their loved ones. Come and spend three full days that will enhance your life!
Our caring staff and families will welcome you to the Windy City with open arms and understanding. You will quickly experience–not just know–that you are not alone. You will develop a support network of others affected by ectodermal dysplasias and learn from their practical tips and ideas.
Meet medical and dental experts and have the unique opportunity to talk with them one-on-one to ask questions. They are not just knowledgeable but compassionate. Discuss recommended treatment options and ways to cope with the emotional challenges of ectodermal dysplasias. Learn how to advocate for yourself, for your loved one and for the entire ectodermal dysplasias community.
You also can share your insights and story to inspire and help others. Stay in the know by hearing the latest research developments for your type of ectodermal dysplasia. While parents and adults are participating in sessions, kids and teens are kept busy with activities in Kays’ Kids Camp and Teen Program.
From: 07/12/2019 - To: 07/14/2019
All day event
10 Marriott Drive, Lincolnshire, Illinois, United States of America