ARM Foundation for Cell & Gene Medicine

Patients say their biggest concern about exploring a specific gene medicine is being able to make an informed decision. Like you, we want to help equip patients and caregivers to make informed decisions about their healthcare. This interactive event is designed to equip patient group leaders to inform their communities about cell and gene medicine. New educational tools will be unveiled, and participants will have the chance to explore and customize resources with help from patient group leaders who have gone before them in effectively educating their disease communities about this topic. Space is limited to 70 attendees, so reserve your spot today!


08:30 AM – Breakfast available
09:00 AM – Welcome, presentation of new educational resources
09:45 AM – Panel Discussion
10:30 AM – Workshop
11:30 AM – Close

For more information and/or to receive a detailed invite letter, please contact

From: 02/25/2020

08:30 AM - 11:30 AM UTC-05:00

1201 K Street Northwest, Washington, District of Columbia, United States of America

Featured Speakers

Susan Sikora-Brisendine
Program Director, ARM Foundation for Cell & Gene Medicine
Susan Sikora-Brisendine will moderate this event, which will include patient organization leader panelists (invited and to be announced). Susan is responsible for overseeing education and communications for the ARM Foundation for Cell & Gene Medicine. She is the chief architect of the global “Healing Genes” cell and gene medicine educational program designed primarily to help patients and caregivers make informed decisions about transformative therapies. Susan has 25 years of experience creating and managing international and national engagement and education initiatives designed to prepare multiple stakeholders for the approval of new medicines, indications or program/service offerings. She specializes in identifying and overcoming barriers that may limit adoption/uptake, and is translating that experience to help various audiences better understand, embrace and access cell and gene medicine. Susan has fostered countless alliances and collaborations among industry, patients, advocacy organizations, academia, and the healthcare community, to advance patient care and scientific discovery. She is dedicated to developing accurate, balanced and easy-to-understand health information. Earlier in her career, she worked for GlaxoSmithKline as global director of public relations within R&D neurosciences and as vice president of a global communications agency specializing in healthcare.