From Data to Decisions – Leveraging Genetic Data Beyond a Diagnosis

Will genomic sequencing or genetic testing give you and your family the answers you seek? And what happens when the results come in? In this discussion, learn what types of testing are available including whole genome and whole exome sequencing and what data or diagnoses they may show. And hear stories from families who have gone through testing and how they leveraged their results and information.

In this discussion you will learn about:
– Potential mental health and emotional impacts in this testing journey
– Ways to best leverage testing to understand your disease
– The potential negative impacts on families receiving genetic diagnoses without available treatments or current research and how your organization can help prepare families to make important testing decisions

Meet your speakers:

• Sharlene Brown
• Amy Brin
• Mariella Simon
• Darrell Robinson