Not Worth Less

Advocates and patients with chronic and life-threatening illnesses will be gathering at a public meeting hosted by the Institute for Clinical and Economic Review (ICER) to challenge the group’s authority over their healthcare.

The New England CEPAC (a core ICER program) will vote on evidence presented in the organization’s report on four treatments for Duchenne muscular dystrophy. The reports that ICER develops are routinely used by the insurance industry to deny patients’ access to life-saving treatments.

The meeting is open to the public and we are gathering advocates to attend in person so that ICER can see that we are #NotWorthLess. ICER is claiming that registration to the event is full, but we’ll be gathering with fellow advocates in the room labeled “Patients Welcome Here”.

From: 07/25/2019

10:00 - 16:00 UTC-04:00

50 Memorial Drive, Cambridge, Massachusetts, United States of America

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