Navigating the Transition of Care for Young Adult Patients

Hear firsthand from young adult rare disease patients who have gone through the transition from pediatric to adult care. They will discuss approaches you can use for yourself or a patient you care for to help make the transition of care coordination from parent or guardian to child more smooth, help you identify the biggest challenges you should be aware of when navigating access and reimbursement, and how to work with your insurer.

In this discussion you will learn about:
– The biggest challenges that young adult rare patients face as they transition to adulthood
– How families and foundations can support young adults through this transition

Meet your featured speakers for this session:

• Amy Ohmer
• Sneha Dave
• Mary Zupanc
• Leah Ratner