How to Support Your Community Pre, During, and After Advanced Therapy Trials
You are invited to a Zoom meeting.
When: April 21, 2023 | 12:00 PM Eastern Time (US and Canada)
Register here. After registering, you will receive a confirmation email containing information about joining the meeting.
About the Event:
During this session, you will hear from advocacy leaders and a physician on the role advocacy groups can play in anticipation of an advanced therapy clinical trial and how that role changes once the trial is in progress and then completed. You will also learn what makes advanced therapy trials unique and what the experience is like to help make informed decisions.
Tamara Schryver, President Thrive with PKD
Kim Nye, President, TESS Research Foundation
Dr. Nick Abreu, NYU Langone Neurogeneticist