Lori Endsley

Rare Disease Day takes place on the last day of February each year. The main objective of Rare Disease Day is to raise awareness amongst the general public and decision-makers about rare diseases and their impact on patients’ lives. The campaign targets primarily the general public and also seeks to raise awareness amongst policy makers, public authorities, industry representatives, researchers, health professionals and anyone who has a genuine interest in rare diseases.

From: 02/28/2020

09:00 AM - 02:30 PM UTC-06:00

200 Southeast Oak Street, Minneapolis, Minnesota, United States of America

Featured Speakers

Sarah Wicks, JD, MPH
The Rare Disease Treatment Approval Process: Balancing Gold Standard Evidence with Patient-Centered Flexibility
Sarah Wicks is an associate at Hyman, Phelps & McNamara, P.C. where she works with sponsors to bring life-changing therapies to market, particularly for persons with rare disease. She is a graduate of the University of Maryland School of Law and Johns Hopkins School of Public Health. Through her efforts, Sarah has gained a growing appreciation for the value of patients’ experiences and the need for the patient voice to inform product development. She is dedicated to furthering the involvement of patients in rare disease drug development as well as advancing and accelerating the development of new breakthrough therapies for those with rare conditions.