Events
Rare Drug Development Symposium
April 29, 2024 – May 1, 2024
Innovative Ideas from Next Generation Change-Makers
The RARE Drug Development Symposium, hosted by Global Genes and the Orphan Disease Center of the University of Pennsylvania, equips advocates with the knowledge, skills and connections they need to advance therapy development for their communities. This year’s theme is Innovative Ideas from Next Generation Change-Makers
What to expect from 2024 keynotes and sessions:
* Interactive Groups, Resource Fair & RARE Research Roadmap
* How Advocates are Shifting the Paradigm to Push Past Limits
* Rethinking Clinical Trials
* Patient-Led Data Initiatives
Rare Drug Development Happens Year-Round
Global Genes provides educational resources to help advocates and organizations become better equipped to work with researchers and industry partners throughout the drug development process.
Rare Research Roadmap: This toolkit was designed to help advocates, individuals, families, and organizations better understand some of the potential routes to treatment and some of the key concepts that are part of these processes to work with researchers and industry partners throughout the drug development process.
Event Speakers
Check back soon for speakers for the 2024 RARE Drug Development Symposium, and what sessions they will be presenting
Plan Your Visit
Should you need hotel accommodations, please use the information below to book your reservation.
Sheraton Philadelphia Downtown
201 North 17th Street
Philadelphia, Pennsylvania 19103
Rate: $229/night
Rate Available: April 29 – May 2, 2024
Last Date to Book: April 6, 2024
Sponsors
Interested in supporting next year’s RARE Drug Development Symposium?
Looking Back: 2023 RARE Drug Development Symposium
Watch videos from last year’s sessions, take a peek at last year’s agenda, and see who the speakers were.