RARE Health Equity Forum

September 25, 2024 – September 28, 2024

View 2023 Agenda

About the Health Equity Forum

The RARE Health Equity Forum convenes stakeholders in the rare disease space to identify ways in which we can better serve marginalized populations within the rare disease community. In its third year, the event will be focused on the theme of “Equity In Action”.

Over the past two years we have worked as a community to learn about, and discuss the biases, barriers and challenges that marginalized communities face within rare disease. We have recognized the need to work together to bring forward more meaningful approaches to tackling these challenges. This year, sessions will provide attendees with actionable tools and strategic insights to support underserved and/or underrepresented patients within their community.

Save the Date!

The 2024 Health Equity Forum will be part of Week in RARE again, and this time, we will see you in Kansas City, Missouri! Look for more information in 2024.

A Look Back at the 2022 RARE Health Equity Summit

2022 Recap

Check out some stats from our event last year

2022 Health Equity Summit Stats

Thank you to our 2023 Health Equity Forum sponsors!

Presenting Sponsors

travere logo

Gold Sponsor

Silver Sponsors

Bronze Sponsors

Amicus Therapeutics
Avidity Biosciences
Blueprint Medicines
Spark Therapeutics

Partner Sponsors


Patient Advocate Sponsors

Chiesi global rare diseases

Media Sponsor

Interested in supporting the 2024 RARE Health Equity Forum?