RARE on the Road is a rare disease leadership series hosted by Global Genes and the EveryLife Foundation for Rare Diseases. These events provide critical education and insight to the rare disease community. This traveling leadership and educational series help equip attendees with the knowledge on advocating for yourself, in your local and rare disease community, as well as how to advocate on a legislative level. The events aim to activate the rare disease community at a local level and empower patients and caregivers with knowledge and insight to better serve their rare community.
Parking Information: Parking is available on the street. However, the building is not accessible from the street level. Everyone must enter through the main hospital entrance on 5th Avenue, take the elevator to the second floor, and walk towards the Bradley Lecture Center. You can also enter from the children’s deck which is located between 4th and 5th Avenue. On the second level of the parking structure, there is a walkway that you can use to access the main building and the Bradley Lecture Center.