Please join us for Rare Family Day 2020 at Ultragenyx in Novato, CA on April 18, 2020, for a day of live music, food, games, refreshments, and much more!
We welcome all families living with any rare disease to join us in celebrating their strength and courage, while also recognizing their daily challenges and sacrifices. The interactions between our employees and families provide a first-hand education about living with rare disease and further inspires the work we do for patients and families. We would like to honor and thank all of the patients who are participating in our clinical trials; however, we also have to follow federal regulations regarding the avoidance of influencing patients in our studies. So sadly, we cannot have patients who are currently participating in selected Ultragenyx studies attend Rare Family Day 2020.
If you are a healthcare provider caring for people with rare diseases, please feel free to forward this invitation to your relevant patients.
Please contact RareFamilyDay@mdgroup.com with any questions or if you are unable to access the registration site.
Hope to see you there!
11:00 AM - 04:00 PM UTC-06:00
Ultragenyx Pharmaceutical Inc. 60 Leveroni Court, Novato, CA 94949