Key sessions, plenaries and sessions from Track 1: Empowering the RARE Individual & Legislative Action will be live streamed here throughout the conference, and may be watched on demand in October.

Sessions from Tracks 2, 3 and 4 will be available to view by clicking the links below:

Help rare disease organizations expand their reach and improve their effectiveness

Help patient advocacy groups develop and execute a research agenda to accelerate the development of therapies

Hear from drug development experts guiding rare disease advocates through the different therapeutic modalities

Welcome Remarks
Tuesday, September 19, 1-1:15pm PT / 4-4:15pm ET

Opening Keynote: We the Scientists: How Patients Are
Driving Research and Why It’s Necessary for Finding Cures
Tuesday, September 19, 1:15-2pm PT / 4:15-5pm ET

Day 1 Closing Plenary: Compelling New Models for Patient Engagement and Generated Patient Data
Tuesday, September 19, 5:15-6pm PT / 8:15-9pm ET

Champions of Hope – Winner Recognition and Celebration
Tuesday, September 19, 6-6:30pm PT / 9-9:30pm ET

Day 2 Welcome and Open Science Data Challenge
Wednesday, September 20, 8:30-9am PT / 11:30am-12pm ET

Day 2 Opening Plenary – Finding Your Flock: Emerging Opportunities to Accelerate Research Through Disease Community Collaborations
Wednesday, September 20, 9-9:45am PT / 12-12:45pm ET

Day 2 Closing Plenary: Strengthened by Our Past, Working Together to Create Our Future
Wednesday, September 20, 5-6pm PT / 8-9pm ET

Plenary Panel: It’s All of Us Against the Disease: The Future of Research Collaborations and Disease Community Consortiums
Thursday, September 21, 10-11am PT / 1-2pm ET

Closing Keynote: Rebel Health: How Rare Disease Communities Lead the Revolution
Thursday, September 21, 11am-12pm PT / 2-3pm ET

Closing Remarks
Thursday, September 21, 12-12:15pm PT / 3-3:15pm ET

Pediatric to Adult Healthcare Transition:
The Rare Disease Experience
Tuesday, September 19, 3:15-4pm PT / 6:15-7pm ET

I’m an Expert, Too! Communicating with HCPs
Tuesday, September 19, 4:15-5pm PT / 7:15-8pm ET

Managing Life Without a Diagnosis
Wednesday, September 20, 10-10:45am PT / 1-1:45pm ET

Coping with the Challenge of Rare Disease – With or Without a Diagnosis
Wednesday, September 20, 11-11:45am PT / 2-2:45pm ET

Grieving Diagnosis, Lack of Diagnosis and Loss
Wednesday, September 20, 12-12:45pm PT / 3-3:45pm ET

Emerging Rare Policy Issues
Wednesday, September 20, 2 – 2:45pm PT / 5 – 5:45pm ET

The Cost of Delayed Diagnosis – After the
National Economic Burden of Rare Disease Study
Wednesday, September 20, 3-3:45pm PT / 6-6:45pm ET

Activating Advocacy for Kids, Teens, and Youth
Wednesday, September 20, 4-4:45pm PT / 7-7:45pm ET